Caregiving for PBA
You’re a caregiver.
When someone you love may have Pseudobulbar Affect (PBA), you’re in a special position—the position to make an impact.
Laura has known Amy since they were 18. And as her longtime friend, Laura knew Amy wouldn’t give up until she got answers about her PBA symptoms.
Laura and Amy are a real caregiver and patient and have been compensated.
Spouses are caregivers.
Marilyn and Jim are a real caregiver and patient and have been compensated.
Understand the impact.
- Are they avoiding social events?
- Are they not going out in public as much as they used to?
- Do they suddenly dread going to work?
- Have their daily routines changed since the episodes started?
Share details with their healthcare provider. It could be critical to making an accurate PBA diagnosis.
What small actions can you take to make a big difference?
Liyah is a real caregiver and has been compensated.
all you can about PBA.
- Answer 7 short questions about your loved one’s crying and/or laughing episodes here: take the PBA Quiz.
- Encourage your loved one to take the PBA Quiz.
- Join Our PBA Support Group on Facebook, where you can meet people living with or affected by PBA.
- Learn more with our PBA FAQs
for your loved one’s healthcare.
- Encourage your loved one to make an appointment with a healthcare provider.
- If you’re able, go to healthcare appointments with your loved one.
- Discuss with a healthcare provider the impact your loved one’s episodes have had on their daily routines.
- If you can’t accompany them to their appointment, help write down notes for them to share with the healthcare provider so they can advocate for themselves.
your loved one in social situations.
- Make a plan together about how to handle a crying and/or laughing episode ahead of time.
- Find a private place to take a break if they feel an episode coming on.
- Take the lead in the situation and leave with your loved one if it becomes too much for them.
- Let them know you are not embarrassed by their crying and/or laughing episodes.
* PBA Nurse Talk is sponsored by Avanir Pharmaceuticals, Inc., which is committed to supporting those who may be suffering from PBA. This program is offered at no cost to those eligible, does not require health insurance, and does not replace speaking with a healthcare provider – only a healthcare provider can diagnose PBA. PBA Nurse Talk conversations with a nurse will remain completely confidential. PBA Nurse Talk is only available to people experiencing uncontrollable crying and/or laughing, not their caregivers.
Remember: PBA can be managed, but a healthcare provider needs to make the diagnosis.
Has your loved one been diagnosed with PBA?
Download the “I Have PBA” card and give it to your loved one to keep with them. They can take control of social situations by sharing it with the people they're with so everyone knows what to expect if they have an episode.
Have your own caregiver story?
If you’re interested in sharing your story as a caregiver, learn how you can become a PBA Ambassador.
All participants are real caregivers and have been compensated.