Caregiving for PBA
You’re a caregiver.
When someone you love may have Pseudobulbar Affect (PBA), you’re in a special position—the position to help make an impact.
Laura is a real caregiver, and Amy is a real patient living with PBA.
Spouses are caregivers.
Marilyn is a real caregiver, and Jim is a real patient living with PBA.
Understand the impact.
- Are they avoiding social events?
- Are they not going out in public as much as they used to?
- Do they suddenly dread going to work?
- Have their daily routines changed since the episodes started?
Share details with their healthcare provider. It could be critical to making an accurate PBA diagnosis.
What small actions can you take to make a big difference?
Laura is a caregiver for a real patient living with PBA.
your loved one in social situations.
- Make a plan together about how to handle a crying and/or laughing episode ahead of time.
- Find a private place to take a break if they feel an episode coming on.
- Take the lead in the situation and leave with your loved one if it becomes too much for them.
- Let them know you are not embarrassed by their crying and/or laughing episodes.
* PBA Nurse Talk is sponsored by Avanir Pharmaceuticals, Inc., which is committed to supporting those who may be suffering from PBA. This program is offered at no cost to those eligible, does not require health insurance, and does not replace speaking with a healthcare provider – only a healthcare provider can diagnose PBA. PBA Nurse Talk conversations with a nurse will remain completely confidential. PBA Nurse Talk is only available to people experiencing uncontrollable crying and/or laughing, not their caregivers.
Remember: PBA can be managed, but a healthcare provider needs to make the diagnosis.
Has your loved one been diagnosed with PBA?
Download the “I Have PBA” card and give it to your loved one to keep with them. They can take control of social situations by sharing it with the people they're with so everyone knows what to expect if they have an episode.
Have your own caregiver story?
If you’re interested in sharing your story as a caregiver, learn how you can become a PBA Ambassador.
Individual results vary. All ambassadors are real patients living with PBA or caregivers for real patients living with PBA.