My Profile
newman riley
Gender:
Male
City:
xenia
State:
Ohio
ZIP Code:
45385
About me:
what? is their only about 4 of us with this disorder? You have no idea how many times I have wanted to kill myself because of this shit.
How many take Nuedexta? does it help? helps me to some degree. still have episodes. as before, unpredictable when they will occur.
The FDA needs to up the dosage. not enough for me. I have a higher metabolism and when i exercise i burn even more. it is a never ending circle of ups and downs and it's getting old.
Finally have a Dr. at the Cleveland Clinic that specializes in pba. Put a name on it to prove i wasn't nuts but still feel that way.
I have so much scaring in my brain when an episode hits it trips so many other things it is becoming more and more difficult to hang on with out more answers or help. Has strained my marriage of 35 years to the breaking point. I feel lost.